Will it ever be easy?
This question crosses my mind almost every day.. I used to tell myself when Tala starts standing up my life will be a little bit easier, when she walks life will be easier.. and so on.. I always think that every milestone she reaches life will be easier just to discover that as she grows up her needs grow with her and there's always a high bar that's really difficult to reach.. and living in a country where there's minimal help with challenged kids makes the bar seem unreachable.. it makes me question my strength.. my abilities.. it makes me feel guilty that I'm not working hard enough.. it makes me pissed off at people who make comments like "thank God she's not as bad as it can be"..
will it ever be easier?
To Find a nursery that will accept my child, a nursery that's ready to go the extra mile to include my child, to find a school that will tell me " of course, your child deserves a fair chance for education like all other kids", to find a facility that will not rip me off to help my child, to find someone who would help in educating parents on how to deal with their challenged kid to get the best out of him, to find a doctor who would understand my frustration and take it easy on me and give his time to explain to me and walk me through my child's prognosis..
will it ever be easier?
To see my child rejected from nurseries and schools just because there's no one to sit next to her? Because the school can't provide a shadow teacher to help my child? To teach me how can I help my child?
Will it ever be easier?
To see parents take their kids away from my child just because she looks different or acts differently?
Will it ever get easier? To feel like I'm at war with time.. I need to beat time and get my child to the place that others think she's supposed to be just to be accepted?
To go out and not find any place that's designed to accommodate disabilities in any kind?
To find medication needed by my child easily and with a reasonable price?
To find materials that she needs to perform certain therapies?
I'm not writing this post to get any kind of sympathy, I don't need it, I need to see change..
I'm just giving you a piece of any parent of a challenged kid's mind so the next time you decide to cast away the child cause you're too lazy to think outside the box and find a solution to help the parent and the kid, you remember this post.. you remember that you are privileged not because you are so smart but because you just got lucky.. you could've been easily in this parents shoes but you got lucky.. thank God for that and start helping others.
Instead of using a child's disability as an excuse to cast him aside, use it to challenge yourself.. how can you help? How can you make it work? Instead of taking the easy way out of " I'm sorry I'm not equipped to take the responsibility"
A parent of a challenged kid has it as hard as it can be.. there's no need to make it harder..
Change your attitude, there's always a way!!!
This question crosses my mind almost every day.. I used to tell myself when Tala starts standing up my life will be a little bit easier, when she walks life will be easier.. and so on.. I always think that every milestone she reaches life will be easier just to discover that as she grows up her needs grow with her and there's always a high bar that's really difficult to reach.. and living in a country where there's minimal help with challenged kids makes the bar seem unreachable.. it makes me question my strength.. my abilities.. it makes me feel guilty that I'm not working hard enough.. it makes me pissed off at people who make comments like "thank God she's not as bad as it can be"..
will it ever be easier?
To Find a nursery that will accept my child, a nursery that's ready to go the extra mile to include my child, to find a school that will tell me " of course, your child deserves a fair chance for education like all other kids", to find a facility that will not rip me off to help my child, to find someone who would help in educating parents on how to deal with their challenged kid to get the best out of him, to find a doctor who would understand my frustration and take it easy on me and give his time to explain to me and walk me through my child's prognosis..
will it ever be easier?
To see my child rejected from nurseries and schools just because there's no one to sit next to her? Because the school can't provide a shadow teacher to help my child? To teach me how can I help my child?
Will it ever be easier?
To see parents take their kids away from my child just because she looks different or acts differently?
Will it ever get easier? To feel like I'm at war with time.. I need to beat time and get my child to the place that others think she's supposed to be just to be accepted?
To go out and not find any place that's designed to accommodate disabilities in any kind?
To find medication needed by my child easily and with a reasonable price?
To find materials that she needs to perform certain therapies?
I'm not writing this post to get any kind of sympathy, I don't need it, I need to see change..
I'm just giving you a piece of any parent of a challenged kid's mind so the next time you decide to cast away the child cause you're too lazy to think outside the box and find a solution to help the parent and the kid, you remember this post.. you remember that you are privileged not because you are so smart but because you just got lucky.. you could've been easily in this parents shoes but you got lucky.. thank God for that and start helping others.
Instead of using a child's disability as an excuse to cast him aside, use it to challenge yourself.. how can you help? How can you make it work? Instead of taking the easy way out of " I'm sorry I'm not equipped to take the responsibility"
A parent of a challenged kid has it as hard as it can be.. there's no need to make it harder..
Change your attitude, there's always a way!!!
